We've spent the evenings in hospitals, worrying and bracing ourselves for the worst. We've become students of the invisible processes in our bodies. We've felt the physical relief of meeting others in our situation, and we've been carried by their optimism, wisdom, and encouragement.
So we do the same for others, who are now where we've been. We are advocates in medical and pharmaceutical circles. We help doctors understand and respond to our disorder. We champion continued investment in research and therapies that improve the quality of life for every aHUS patient.